The Application of Communication Privacy Management Theory to Health Information on COVID-19 Through Social Media among Young Women
Background: Social media is open to inappropriate access, misuse, and disclosure of health data. The increasing public anxiety about the COVID-19 outbreak was triggered by the spread of hoax news. This research applies the framework of Communication Privacy Management Theory (CPM) for analyzing the disclosure of health information about COVID-19 through social media. This study aimed to explore health information on COVID-19 through social media in young women.
Subjects and Method: This was a qualitative study with a phenomenological approach. The study was conducted in Surakarta, Central Java, from March - August 2021. Study participantss involving 10 women aged 23-24 year as participants. The study dimensions consist of privacy ownership within the boundaries of privacy, privacy control through privacy rules, and turbulence of health information privacy regarding COVID-19. The data were collected by literature review and in-depth interview.
Results: Privacy ownership is privacy right and can be disclosed by the authorized only. COVID-19 patients’ status should be disclosed for tracing and finding convalescence plasma donor. Disclosure is useful to increase knowledge, correct information, influence people, and appeal preventive and curative attempts. Disclosure is useful to increase knowledge, correct information, influence people, and appeal preventive and curative attempts. Disclosure should consider different genders, situations, expectations, cultures, situational and condition demand, and ethics. Criteria of privacy border relate to urgency and need. Permeability always changes, and situation can lead to private border removal. Posting privacy information needs to crosscheck truth, consider privacy right, and privacy setting. Privacy control is required to avoid abuse. Privacy turbulence results from private rule infringement, private and public information bias, hoax, private information leakage, gossip, etc. Socialization, system improvement and supervision, and sanction imposition are needed.
Conclusion: CPM theory can be used to explore private information on COVID-19.
Keywords: communication privacy management, disclosure, social media, phenomenology
Correspondence: Muhammad Agung Diponegoro. Masters Program in Communication Sciences, Faculty of Social and Political Sciences, Universitas Sebelas Maret Email: firstname.lastname@example.org. Mobile: +62214281288.
Journal of Health Policy and Management (2022), 07(01): 14-23
Acquisti A, Gross R (2006). Imagined communities: Awareness, information sharing and privacy on the Facebook. In Proceedings of Privacy Enhancing Technologies Workshop (36–58). Cambridge, England: Springer. https://doi.org/10.1007/11957454_3.
Badan Pusat Statistik Kota Surakarta (2020). Kota Surakarta Dalam Angka 2020. Surakarta.
Brumett E, Steuber KR (2015). To Reveal or Conceal?: Privacy Management Processes among Interracial Romantic Partners. Western Journal of Communication 79: 22–44. https://doi.org/10.1080/10570314.2014.943417.
East L, Jackson D, O’Brien, Peters K (2015). Being diagnosed with a sexually transmitted infection (STI): sources of support for young women. Contemporary Nurse, 50(1): 50-57. https://doi.org/10.1080/10376178.2015.1013427.
Child JT, Haridakis PM, Petronio P (2012). Blogging privacy setting orientations, privacy management, and content deletion practices: The variability of online privacy management activity at different stages of social media use. Computers in Human Behavior. 5: 1859–1872. doi:10.1016/j.chb.2012.05.004.
Chennamaneni A, Taneja A. (2015). Communication privacy management and self disclosure on social media A case of Facebook. Twenty first Americas Conference on Information Systems, Puerto Rico. Retrieved from http://aisel.aisnet.org/cgi/viewcontent.cgiarticle=1446&context=amcis2015.
Christofides E, Muise A, Desmarais S (2009). Information disclosure and control on Facebook: Are they two sides of the same coin or two different processes?. Cyberpsychology & Behavior. 12(3):341 – 345. DOI: 10.1089/cpb.2008.0226.
Creswell JW (2009). Research design: Qualitative, quantitative, and mixed methods approaches. Third Edition. Thousand Oaks. California: Sage Publications. Dey R, Jelveh Z, Ross K (2012). Facebook users have become much more private: A large scale
study. 4th IEEE International Workshop on Security and Social Networking (SESOC). Lugano. Switzerland. 346-352.
Durham WT (2008). The rules based process of revealing/concealing the family planning decisions of voluntary child free couples: a communication privacy management perspective. Commun Stud. 59: 132-47. https://doi.org/10.1080/10510970802062451.
Griffin E, Ledbetter A, Sparks G (2019). A First Look at Communication Theory 10th ed. McGraw Hill: New York [Accessed on July 10, 2020].
Gross R, Acquisti A. (2005). Information revelation and privacy in online social networks. ACM Workshop on Privacy in the Electronic Society, Alexandria, VA [Accessed on July 10, 2020]
Kementerian Komunikasi dan Informasi Biro Humas. (2020). Siaran Pers No. 42/HM/KOMINFO/03/2020 Selasa, 17 Maret 2020 Tentang Kawal Infor-masi Covid-19. Kominfo Identifikasi 242 Konten Hoaks [Accessed on 10 July 2020].
Klosek J (2011). Protecting your health privacy: a citizen’s guide to safeguarding the security of your medical information. Santa Barbara, California 931161911. United States of America. available on the World Wide Web [Accessed on July 10, 2020].
Krasnova H, Kolesnikova E, Guenther O. (2009). It won’t happen to me!: Self disclosure in online social networks. In Proceedings of the 15th Americas Conference on Information Systems (Paper 343). San Francisco, CA: Association for Information Systems[Accessed on August 17, 2021]. Lannutti P. (2013). Same sex marriage and privacy management: Examining couples’ communication with family members. Journal of Family Communication 13: 60–75.
Laufer RS, Wolfe M. (1977). Privacy as a Concept and a Social Issue: A Multidimensional Developmental Theory. J. Soc. Issues. 33: 22–42 [Accessed on August 17, 2021]
Lewis CC, Matheson DH, Brimacombe AE (2011). Factors Influencing Patient Disclosure to Physicians in Birth Control Clinics: An Application of the Communication Privacy Management Theory. Health Communication, 26: 502–511. DOI: 10.1080/10410236.2011.556081.
Littlejohn SW, Foss, KA, Oetzel, JG (2017). Theory of Human Communication. Eleventh Edition. Long Grove, IL: Waveland Press, Inc. United States of America. www.waveland.com.
Lupton D (2019). The Australian Women and Digital Health Project: Comprehensive Report of Findings. Canberra: News and Media Research Centre, University of Canberra [Accessed on July 10, 2020].
Mc Aloon EP (2014). Management of privacy boundaries for people with visible disabilities. Thesis. Indiana University [Accessed on August 17, 2021].
McKnight D, Lankton N, Tripp J (2011). Social networking information disclosure and continuance intention: A disconnect. 44th Hawaii International Conference on System Sciences, Kauai, HI [Accessed on August 17, 2021].
Moustakas C (1994). Phenomenological Research Methods. London: SAGE Pub. 119-153 [Accessed on July 10, 2020].
Nasir NM, Baequni, Nurmansyah MI (2020). Misinformation related to COVID-19 in Indonesia (Kesalahan Informasi COVID-19 di Indonesia). Jurnal Administrasi Kesehatan Indo-nesia. 8(1) Special Issue. Universitas Airlangga. Doi: 10.20473/jaki.v8i2.2020.51-59
[Accessed on 17 August, 2021].
Narasimhulu DM, Karakash S, Weedon J, Minkoff H (2016). Patterns of internet use by pregnant women, and reliability of pregnancy related searches. Matern Child Health J. 20(12): 250209. https://doi.org/10.1007/s1099501620750.
Petronio S (2002). Boundaries of privacy: dialectics of disclosure. New York: State University of New York Press [Accessed on July 10, 2020].
Petronio S (2013). Brief status report on communication privacy management theory. Journal of Family Communication 13: 6–14.
Puspitasari I, Firdauzy A (2019). Characterizing consumer behavior in leveraging social media for e-patient and health related activities. Int J Environ Res Public Health. 16: 3348; doi: 10.3390/ijerph16183348.
Turner A, Dallaire Fortier C, Murtagh MJ (2013). Spontaneous Generations: A Journal for the History and Philosophy of Science. 7(1): 69-80. DOI: 10.4245/sponge.v7i1.19555.
Rowlands JI, Loxton D, Dobson A, Mishra DG (2015). Seeking health information online: association with young Australian women’s physical, mental, and reproductive Health, Journal of Medical Internet Research, 17(5). Available from http://www.jmir.org-/2015/5/e120/.
Safran C, Bloomrosen M, Hammond W, Bloomrosen M, Hammond WE, Labkoff S, Markel Fox S, et al. (2007). Toward a national framework for the secondary use of health data: an American Medical Informatics Association White Paper. J Am Med Inform Assoc.14: 1–9. DOI: 10.1197/jamia.M2273
Sekolah Pascasarjana Universitas Sebelas Maret. (2020). Data Mahasiswa Baru Program Studi Ilmu Kesehatan Masyarakat 2020. Surakarta.
Steuber KR, McLaren RM (2015). Privacy recalibration in personal relationships: Rule usage before and after an incident of privacy turbulence. Communication Quarterly 63(3): 345-364. DOI: 10.1080/01463373.2015.1039717.
Solove DJ (2008). The end of privacy?. Sci Am. 299:100 [Accessed on August 17, 2021].
Song H, Cramer EM, McRoy S, May A (2013). Information needs, seeking behaviors, and support among low income expectant women. Women Health. 53(8): 824-42. https://doi.org/10.1080/03630242.2013.831019.
Stutzman, Kramer-Duffield J (2010). Friends only: Examininga privacy enhancing behavior in Facebook. In CHI 2010 Proceedings. 1553–1562. New York, NY: ACM [Accessed on August 17, 2021].
Sudarsyah A (2013). Kerangka Analisis Data Fenomenologi (Contoh Analisis Teks Sebuah Catatan Harian). 13(1). https://doi.org/10.17509/jpp.v13i1.3475.
var der Veldan M, El Emam K (2013). Not all my friends need to know: a qualitative study of teenage patients, privacy, and social media. J Am Med Inform Assoc. 20:16 [Accessed on August 17, 2021].
Venetis M, Conrad KM, Checton M, Greene K (2014). Cancer communicationand partner burden: An exploratory study. Journal of Communication 64: 82–102. https://doi.org/10.1111/jcom.12069.
Walther J (2012). Social Information Processing Theory, in A First Look at Communication Theory. Eight Edition, E.M. Griffin (Eds). New York: Mc Graw Hill: 138-150 [Accessed on August 17, 2021].
Wakefield MA, Loken B, Hornik RC (2010). Use of mass media campaigns to change health behavior. Lancet. 376 (9748): 1261–1271. doi:10.1016/S01406736(10)608094.
Walker LO, Mackert MS, Ahn J, Vaughan MW, Sterling BS, Guy S, Hendrickson S (2017). e Health and new moms: contextual factors associated with sources of health information. Public Health Nursing, 34(6): 561-68. https://doi.org/10.1111/phn.12347. Wilson TD (2002).
Alfred Schutz, phenomenology and research methodology for information behaviour research. The New Review of Information Behaviour Research. 3: 71-81. Retrieved from http://informationr.net/tdw/publ/papers/schutz02.html on August 2021.
Weitzman ER., Cole E, Kaci L, Kenneth DM (2010). Social but safe? Quality and safety of diabetes related online social networks. J Am Med Inform Assoc; 18: 2927 [Accessed on August 17, 2021][Accessed on July 10, 2020].
WHO (2020). Countering misinformation about COVID-19. A joint campaign with the Government of the United Kingdom. Government of the United Kingdom [Accessed on August 17, 2021].
Xiao Z, Li X, Qiao S, Zhou Y, Shen Z, Tang Z (2015). Using communication privacy management theory to examine HIV disclosure to sexual partners/ spouses among PLHIV in Guangxi. AIDS Care. 27(S1): 73–82. http://dx.doi.org/10.1080/09540121.2015.1055229.
Yuliarti MS, Anggreni LS, Utari P (2018). Privacy and social media conceptual review on private turbulence in communication privacy management of social media. International Conference on Media and Communication Studies (ICOMACS 2018). 199 – 202 http://creativecommons.org/licenses/bync/4.0/[Accessed on August 17, 2021]
Zimmerman MS (2018). Assessing the reproductive health related information seeking behavior of low income women: describing a two step information seeking process, Journal of health communication, 23(1): 72-79 [Accessed on August 17, 2021].
Zwitter A, Gstrein OJ (2020). Big data, privacy and COVID-19 learning from humanitarian expertise in data protection. J Int Humanitarian Act. 5:4. https://doi.org/10.1186/s41018020000726.
Zlatolas LN, Welzer T, Hölbl M, Heriˇcko M, Kamišali´c A (2019). A Model of Perception of Privacy, Trust, and Self Disclosure on Online Social Networks. Entropy. 21(772): 1 - 18; doi: 10.3390/e21080772.